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Who We Are?I have had ALS since early 2014. From then until now I have met many people, both in person and virtually, some diagnosed years ago and some just recently . Our Mission and Vision, the reasons Help ALS Speak exists right now, and our growing ability to help people get past some barriers of the disease was born through these interactions. The largest single barrier that many people talk about is the loss of speech. Simply put, the ability to speak through artificial means would have made a significant difference in their lives. We are here to help make that happen.
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Our MissionTo provide
People with ALS (pALS) a path to keep their voice and be heard through Augmentative and Alternative Communication devices. |
Our VisionServing the ALS Community
with the education, connections, and resources so that meaningful interactions with family, medical personnel, and caregivers are not lost due to an inability to speak. |
Our ValuesEmpower people with ALS to speak through technology. It’s free to be kind and compassionate. Treat everyone with respect and dignity. Be a resource for the ALS community by providing information and removing uncertainty.
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Resources
Understanding ALSALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. There is no cure and the disease is always fatal.
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Navigating ALSTo provide People with ALS (pALS) a path to keep their voice and be heard through Augmentative & Alternative Communication devices.
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Become An AdvocateWe would love to have you join us as an advocate, publicly supporting and recommending Help ALS Speak in our mission to provide a path for ...
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Focus on Giving HopeIn this opening focused fundraiser, we need to secure resources which will help us pay expenses that pALS cannot afford to pay and to hire a part-time person to manage our website and social media outlets.
Donations are always tax-deductible. |
Do Good. Join our mission
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Stay Up to Date
News and Articles
Novel AI-powered platform aims to help ALS patients to communicate
January 12, 2024
January 12, 2024
An evolution in understanding the diversity of ALS progression
We must do more to accelerate the diagnosis and treatment of ALS
April 19, 2024
April 19, 2024
Certain spinal fluid biomarkers may predict responses to NurOwn
April 23, 2024
April 23, 2024
Phase 2 trial testing dazucorilant in ALS patients now fully enrolled
April 24, 2024
April 24, 2024