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Understanding ALSALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. There is no cure and the disease is always fatal.
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Navigating ALSTo provide People with ALS (pALS) a path to keep their voice and be heard through Augmentative & Alternative Communication devices.
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Become An AdvocateWe would love to have you join us as an advocate, publicly supporting and recommending Help ALS Speak in our mission to provide a path for ...
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Frequently Asked Questions
What causes ALS?
No one knows what causes most cases of ALS. Scientists have been studying many factors that could be linked with ALS, such as heredity and environmental exposures. Other scientists have looked at diet or injury. No cause has been found for most cases of ALS. In the future, scientists may find that many factors together cause ALS. How many people with ALS have been identified in the United States?
Although no one knows for sure, reports suggest less than 20,000 people in the United States have ALS; every year about 5,000 people are told by their doctor that they have the disease. Because no records on ALS have been kept throughout the country, it is hard to estimate the number of ALS cases in the United States. How long do people with ALS live?
Unfortunately, there is no known cure for Amyotrophic Lateral Sclerosis (ALS), and the current prognosis is two to four years from onset. How long a person lives with ALS seems to be related to age; people who are younger when the illness starts live slightly longer. What is bulbar ALS?
Bulbar disease accounts for the majority of the worst symptoms of ALS. The loss of the ability to swallow changes eating from a pleasurable task to a burden of survival. Loss of communication effectively imprisons the patient in a state of isolation. |
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